I did get the MCAS diagnosis, but it seemed like a side effect of the others. I still wonder about EDS myself. How did you get diagnosed? What a ride it is, hey? I hope you are doing well.
Thank you for sharing this so openly. What stayed with me most was how healing became less about finding one answer and more about learning a different way to live. 🤍
Thanks so much for sharing this Kayla - that is an intense journey indeed. I am sure you don't need someone throwing more recs your way, but some of your journey mirrors mine and in particular the work of Nicole Sachs completely helped - I know others like @Elizabeth Endres found the same. <3
Thank you so much for sharing your journey Kayla 🙏
My wife and I went through years of being our own researchers, guinea pigs and advocates when the system didn't know how to help her with what was ultimately diagnosed as Menieres but wasn't. It's a lot, and huge kuddos to you for listening to your body and never giving up. Also for embracing how the difficulties of your journey are giving you back some unexpected positives.
What an awesome story . I am glad you are e doing better and I wish for you all the best !🥰💞
Bless you love, you're a strong soul.
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Thank you for the love. Just subscribed.
Thank you. I thought for sure this was going to end with EDS diagnosis and mast cell activation. One of my first diagnosis was adrenaline fatigue.
This story is relatable to many people who get tests that all show up normal. It is a journey that is both physically and mentally draining.
Just subscribed to your work. Excited to dig in.
Thank you,
I did get the MCAS diagnosis, but it seemed like a side effect of the others. I still wonder about EDS myself. How did you get diagnosed? What a ride it is, hey? I hope you are doing well.
Thanks. The ride yes!!! 30 plus years to get the right diagnosis. My first blog post gives a good overview.
Thank you for sharing this so openly. What stayed with me most was how healing became less about finding one answer and more about learning a different way to live. 🤍
Thanks so much for sharing this Kayla - that is an intense journey indeed. I am sure you don't need someone throwing more recs your way, but some of your journey mirrors mine and in particular the work of Nicole Sachs completely helped - I know others like @Elizabeth Endres found the same. <3
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Thank you so much for sharing your journey Kayla 🙏
My wife and I went through years of being our own researchers, guinea pigs and advocates when the system didn't know how to help her with what was ultimately diagnosed as Menieres but wasn't. It's a lot, and huge kuddos to you for listening to your body and never giving up. Also for embracing how the difficulties of your journey are giving you back some unexpected positives.